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자폐권리운동: 두 판 사이의 차이

자폐권리운동 (원본 보기)

2018년 5월 9일 (수) 22:30 판

23 바이트 추가됨 ,  2018년 5월 9일 (수)
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→‎어티즘 스픽스에 대한 보이콧
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Autism Speaks has produced three major films, each met with strong opposition from the Autistic community. ''[[Autism Every Day]]'' is a documentary featuring interviews of parents with mostly negative opinions about autism and their situations. It has been criticized due to parents speaking about their children as if they are not there.  In one interview, former board member [[Alison Singer]], mother of a daughter with autism, reveals she contemplated murder-suicide with her daughter in the same room.<ref name="murray">{{cite book|author=Murray, Stuart|year=2008|title=Representing Autism: Culture, Narrative, Fascination|publisher=Liverpool University Press|page=135|isbn=978-1-84631-092-8|quote=...&nbsp;[the film] drew substantial criticism from disability rights advocates because of its concentration on the condition as one of problems and difficulties, especially for parents. It created particular controversy when one of the mothers being interviewed, discussing the struggles she had endured in searching for a school for her child, commented that the only reason she had not put her autistic daughter in her car and driven off of a bridge was because she has another daughter, who does not have autism.}}</ref> ''I Am Autism'' is a short video that [[personifies]] autism as a narrative voice, which compares itself to several diseases<ref name=Transcript>{{cite web|url=http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/|title=Horrific Autism Speaks "I am Autism" ad transcript|date=2009-09-23|publisher=Autistic Self Advocacy Network}}</ref> and makes the false claim<ref name=Divorce>{{cite web|url=http://www.cnn.com/2010/HEALTH/05/19/autism.divorce.rates/|title=Parents of kids with autism not more likely to divorce, study suggests|author=Madison Park|publisher=CNN}}</ref> of causing divorce.<ref>{{cite news |author=  Biever C |title='Poetic' autism film divides campaigners |date=2009-09-29 |work=New Scientist |url=https://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html |accessdate=2009-10-08 | archiveurl= https://web.archive.org/web/20091003122813/http://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html| archivedate= 3 October 2009 <!--DASHBot-->| deadurl= no}}</ref><ref>{{cite news|author=Wallis C |title='I Am Autism': an advocacy video sparks protest |work=TIME |date=2009-11-06 |url=http://www.time.com/time/health/article/0,8599,1935959,00.html |accessdate=2009-12-07 |archiveurl=https://web.archive.org/web/20091109022116/http://www.time.com/time/health/article/0%2C8599%2C1935959%2C00.html |archivedate=9 November 2009 |deadurl=no }}</ref> ''[[Sounding the Alarm]]'' is a documentary exploring the transition to adulthood and the cost of lifetime care. It was criticized for being "full of dehumanizing rhetoric" and portraying ignorance of nonverbal communication.<ref name=SoundingTheAlarm>{{cite web|url=http://autismwomensnetwork.org/film-review-of-documentary-sounding-the-alarm-battling-the-autism-epidemic/|title=Film Review of documentary "Sounding the Alarm: Battling the Autism Epidemic"|author=Lei Wiley-Mydske|date=2014-07-19|publisher=Autism Women's Network}}</ref>
Autism Speaks has produced three major films, each met with strong opposition from the Autistic community. ''[[Autism Every Day]]'' is a documentary featuring interviews of parents with mostly negative opinions about autism and their situations. It has been criticized due to parents speaking about their children as if they are not there.  In one interview, former board member [[Alison Singer]], mother of a daughter with autism, reveals she contemplated murder-suicide with her daughter in the same room.<ref name="murray">{{cite book|author=Murray, Stuart|year=2008|title=Representing Autism: Culture, Narrative, Fascination|publisher=Liverpool University Press|page=135|isbn=978-1-84631-092-8|quote=...&nbsp;[the film] drew substantial criticism from disability rights advocates because of its concentration on the condition as one of problems and difficulties, especially for parents. It created particular controversy when one of the mothers being interviewed, discussing the struggles she had endured in searching for a school for her child, commented that the only reason she had not put her autistic daughter in her car and driven off of a bridge was because she has another daughter, who does not have autism.}}</ref> ''I Am Autism'' is a short video that [[personifies]] autism as a narrative voice, which compares itself to several diseases<ref name=Transcript>{{cite web|url=http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/|title=Horrific Autism Speaks "I am Autism" ad transcript|date=2009-09-23|publisher=Autistic Self Advocacy Network}}</ref> and makes the false claim<ref name=Divorce>{{cite web|url=http://www.cnn.com/2010/HEALTH/05/19/autism.divorce.rates/|title=Parents of kids with autism not more likely to divorce, study suggests|author=Madison Park|publisher=CNN}}</ref> of causing divorce.<ref>{{cite news |author=  Biever C |title='Poetic' autism film divides campaigners |date=2009-09-29 |work=New Scientist |url=https://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html |accessdate=2009-10-08 | archiveurl= https://web.archive.org/web/20091003122813/http://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html| archivedate= 3 October 2009 <!--DASHBot-->| deadurl= no}}</ref><ref>{{cite news|author=Wallis C |title='I Am Autism': an advocacy video sparks protest |work=TIME |date=2009-11-06 |url=http://www.time.com/time/health/article/0,8599,1935959,00.html |accessdate=2009-12-07 |archiveurl=https://web.archive.org/web/20091109022116/http://www.time.com/time/health/article/0%2C8599%2C1935959%2C00.html |archivedate=9 November 2009 |deadurl=no }}</ref> ''[[Sounding the Alarm]]'' is a documentary exploring the transition to adulthood and the cost of lifetime care. It was criticized for being "full of dehumanizing rhetoric" and portraying ignorance of nonverbal communication.<ref name=SoundingTheAlarm>{{cite web|url=http://autismwomensnetwork.org/film-review-of-documentary-sounding-the-alarm-battling-the-autism-epidemic/|title=Film Review of documentary "Sounding the Alarm: Battling the Autism Epidemic"|author=Lei Wiley-Mydske|date=2014-07-19|publisher=Autism Women's Network}}</ref>


단체에 대한 여러가지 반대에 따라 어티즘 스픽스의 기금 이벤트가 항의시위의 대상이 되기도 했다.
단체에 대한 여러가지 반대에 따라 어티즘 스픽스의 기금 이벤트가 항의시위의 대상이 되기도 했다<ref name=JoinTheProtest>{{언어고리|en}} {{cite web|url=http://autisticcommunity.org/2013/11/12/join-the-protest-against-autism-speaks/|title=Join the Protest Against Autism Speaks|date=2013-11-12|publisher=Association for Autistic Community}}</ref><ref name=HoyaProtest>{{언어고리|en}} {{cite web|url=http://www.autistichoya.com/2012/11/protesting-autism-speaks.html|title=Protesting Autism Speaks|author=Lydia Brown|date=2012-11-05|publisher=Autistic Hoya}}</ref>. 대부분의 시위는 [[자폐자조네트워크]]가 조직했다<ref name=ASANProtest>{{언어고리|en}} {{cite web|url=http://autisticadvocacy.org/2012/11/protesting/|title=Protesting|author=Katie Miller|date=2012-11-17|publisher=Autistic Self Advocacy Network}}</ref>. 2013년에는, '''보이콧 어티즘 스픽스'''(Boycott Autism Speaks)라는 단체가 어티즘 스픽스에 기부금을 내는 회사 목록을 연락처 정보와 함께 공개하면서, 어티즘 스픽스에 대한 직접적인 요구가 바람직한 변화를 이루지 못했기 때문에, 자폐 당사자들이 [[보이콧]]을 통해 해당 회사들이 어티즘 스픽스에 대한 지지를 철회할 것을 요구했다<ref name=BAS>{{언어고리|en}} {{cite web|url=http://boycottautismspeaks.com/contact-sponsors.html|title=Boycott Autism Speaks - Contact Sponsors|publisher=Boycott Autism Speaks}}</ref>. 한 달 후 2014년에는, ASAN을 필두로 한 26개 장애 단체들이 어티즘 스픽스의 스폰서들에 공동서한을 보내, 스폰서, 기부자와 다른 지지자들에게 도덕적 책임을 요구했다<ref name=JointLetter>{{언어고리|en}} {{cite web|url=http://autisticadvocacy.org/2014/01/2013-joint-letter-to-the-sponsors-of-autism-speaks/|title=2014 Joint Letter to the Sponsors of Autism Speaks|date=2014-01-06|publisher=Autistic Self Advocacy Network}}</ref>.
Because of the number of objections to the organization, Autism Speaks fundraising events have been the object of organized protest.<ref name=JoinTheProtest>{{언어고리|en}} {{cite web|url=http://autisticcommunity.org/2013/11/12/join-the-protest-against-autism-speaks/|title=Join the Protest Against Autism Speaks|date=2013-11-12|publisher=Association for Autistic Community}}</ref><ref name=HoyaProtest>{{cite web|url=http://www.autistichoya.com/2012/11/protesting-autism-speaks.html|title=Protesting Autism Speaks|author=Lydia Brown|date=2012-11-05|publisher=Autistic Hoya}}</ref> Many of these protests are organized by the Autistic Self Advocacy Network.<ref name=ASANProtest>{{cite web|url=http://autisticadvocacy.org/2012/11/protesting/|title=Protesting|author=Katie Miller|date=2012-11-17|publisher=Autistic Self Advocacy Network}}</ref> In 2013, the organization Boycott Autism Speaks published a list of companies that donate money to Autism Speaks along with their contact information, urging those in the Autistic community to pressure those companies into dropping their support via an active [[boycott]], since direct appeals to Autism Speaks did not result in the desired changes.<ref name=BAS>{{cite web|url=http://boycottautismspeaks.com/contact-sponsors.html|title=Boycott Autism Speaks - Contact Sponsors|publisher=Boycott Autism Speaks}}</ref> A month later, ASAN published its 2014 Joint Letter to the Sponsors of Autism Speaks, signed by 26 different disability-related organizations, appealing to the moral responsibility of the sponsors, donors, and other supporters.<ref name=JointLetter>{{cite web|url=http://autisticadvocacy.org/2014/01/2013-joint-letter-to-the-sponsors-of-autism-speaks/|title=2014 Joint Letter to the Sponsors of Autism Speaks|date=2014-01-06|publisher=Autistic Self Advocacy Network}}</ref>


== 자폐권리운동 단체들 ==
== 자폐권리운동 단체들 ==
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