편집
7,239
번
자폐권리운동: 두 판 사이의 차이
잔글
→어티즘 스픽스에 대한 보이콧
잔글 (→어티즘 스픽스에 대한 보이콧) |
|||
| 60번째 줄: | 60번째 줄: | ||
== 어티즘 스픽스에 대한 보이콧 == | == 어티즘 스픽스에 대한 보이콧 == | ||
< | 자폐인권옹호자들은 전세계적으로 가장 많이 인지된 자폐 옹호단체인 [[어티즘 스픽스]]는 특히 자폐의 치료를 옹호하면서, 자폐에 대한 대표처럼 보여지고 있다고 지적한다<ref name=MasterPost>{{cite web|url=http://thecaffeinatedautistic.wordpress.com/new-autism-speaks-masterpost-updated-62014/|title=New Autism Speaks Masterpost (Updated 6/20/14)|author=Beth Ryan|date=2014-06-20|publisher=The Caffeinated Autistic}}</ref>. 그 결과, 어티즘 스픽스는 부정확한 진단 기준, 기능에 따른 이름붙이기, | ||
As a result, Autism Speaks is implicated in perpetuating misconceptions, including inaccurate diagnostic criteria, functioning labels, [[People-first language|"person"-first language]], the [[medical model of disability]], equation of communication and intelligence, promotion of [[applied behavior analysis|ABA]] therapy, comparisons between autism and diseases, the view of rising autism diagnosis rates as an epidemic, the concept of autism as something separable from people with autism, the view of children with autism as trapped or broken, the belief that married couples who have children with autism are more likely to divorce, and the belief that parent-on-child murder is caused by lack of services.<ref name="DailyKos" /> | As a result, Autism Speaks is implicated in perpetuating misconceptions, including inaccurate diagnostic criteria, functioning labels, [[People-first language|"person"-first language]], the [[medical model of disability]], equation of communication and intelligence, promotion of [[applied behavior analysis|ABA]] therapy, comparisons between autism and diseases, the view of rising autism diagnosis rates as an epidemic, the concept of autism as something separable from people with autism, the view of children with autism as trapped or broken, the belief that married couples who have children with autism are more likely to divorce, and the belief that parent-on-child murder is caused by lack of services.<ref name="DailyKos" /> | ||
| 70번째 줄: | 69번째 줄: | ||
Autism Speaks has produced three major films, each met with strong opposition from the Autistic community. ''[[Autism Every Day]]'' is a documentary featuring interviews of parents with mostly negative opinions about autism and their situations. It has been criticized due to parents speaking about their children as if they are not there. In one interview, former board member [[Alison Singer]], mother of a daughter with autism, reveals she contemplated murder-suicide with her daughter in the same room.<ref name="murray">{{cite book|author=Murray, Stuart|year=2008|title=Representing Autism: Culture, Narrative, Fascination|publisher=Liverpool University Press|page=135|isbn=978-1-84631-092-8|quote=... [the film] drew substantial criticism from disability rights advocates because of its concentration on the condition as one of problems and difficulties, especially for parents. It created particular controversy when one of the mothers being interviewed, discussing the struggles she had endured in searching for a school for her child, commented that the only reason she had not put her autistic daughter in her car and driven off of a bridge was because she has another daughter, who does not have autism.}}</ref> ''I Am Autism'' is a short video that [[personifies]] autism as a narrative voice, which compares itself to several diseases<ref name=Transcript>{{cite web|url=http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/|title=Horrific Autism Speaks "I am Autism" ad transcript|date=2009-09-23|publisher=Autistic Self Advocacy Network}}</ref> and makes the false claim<ref name=Divorce>{{cite web|url=http://www.cnn.com/2010/HEALTH/05/19/autism.divorce.rates/|title=Parents of kids with autism not more likely to divorce, study suggests|author=Madison Park|publisher=CNN}}</ref> of causing divorce.<ref>{{cite news |author= Biever C |title='Poetic' autism film divides campaigners |date=2009-09-29 |work=New Scientist |url=https://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html |accessdate=2009-10-08 | archiveurl= https://web.archive.org/web/20091003122813/http://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html| archivedate= 3 October 2009 <!--DASHBot-->| deadurl= no}}</ref><ref>{{cite news|author=Wallis C |title='I Am Autism': an advocacy video sparks protest |work=TIME |date=2009-11-06 |url=http://www.time.com/time/health/article/0,8599,1935959,00.html |accessdate=2009-12-07 |archiveurl=https://web.archive.org/web/20091109022116/http://www.time.com/time/health/article/0%2C8599%2C1935959%2C00.html |archivedate=9 November 2009 |deadurl=no }}</ref> ''[[Sounding the Alarm]]'' is a documentary exploring the transition to adulthood and the cost of lifetime care. It was criticized for being "full of dehumanizing rhetoric" and portraying ignorance of nonverbal communication.<ref name=SoundingTheAlarm>{{cite web|url=http://autismwomensnetwork.org/film-review-of-documentary-sounding-the-alarm-battling-the-autism-epidemic/|title=Film Review of documentary "Sounding the Alarm: Battling the Autism Epidemic"|author=Lei Wiley-Mydske|date=2014-07-19|publisher=Autism Women's Network}}</ref> | Autism Speaks has produced three major films, each met with strong opposition from the Autistic community. ''[[Autism Every Day]]'' is a documentary featuring interviews of parents with mostly negative opinions about autism and their situations. It has been criticized due to parents speaking about their children as if they are not there. In one interview, former board member [[Alison Singer]], mother of a daughter with autism, reveals she contemplated murder-suicide with her daughter in the same room.<ref name="murray">{{cite book|author=Murray, Stuart|year=2008|title=Representing Autism: Culture, Narrative, Fascination|publisher=Liverpool University Press|page=135|isbn=978-1-84631-092-8|quote=... [the film] drew substantial criticism from disability rights advocates because of its concentration on the condition as one of problems and difficulties, especially for parents. It created particular controversy when one of the mothers being interviewed, discussing the struggles she had endured in searching for a school for her child, commented that the only reason she had not put her autistic daughter in her car and driven off of a bridge was because she has another daughter, who does not have autism.}}</ref> ''I Am Autism'' is a short video that [[personifies]] autism as a narrative voice, which compares itself to several diseases<ref name=Transcript>{{cite web|url=http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/|title=Horrific Autism Speaks "I am Autism" ad transcript|date=2009-09-23|publisher=Autistic Self Advocacy Network}}</ref> and makes the false claim<ref name=Divorce>{{cite web|url=http://www.cnn.com/2010/HEALTH/05/19/autism.divorce.rates/|title=Parents of kids with autism not more likely to divorce, study suggests|author=Madison Park|publisher=CNN}}</ref> of causing divorce.<ref>{{cite news |author= Biever C |title='Poetic' autism film divides campaigners |date=2009-09-29 |work=New Scientist |url=https://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html |accessdate=2009-10-08 | archiveurl= https://web.archive.org/web/20091003122813/http://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html| archivedate= 3 October 2009 <!--DASHBot-->| deadurl= no}}</ref><ref>{{cite news|author=Wallis C |title='I Am Autism': an advocacy video sparks protest |work=TIME |date=2009-11-06 |url=http://www.time.com/time/health/article/0,8599,1935959,00.html |accessdate=2009-12-07 |archiveurl=https://web.archive.org/web/20091109022116/http://www.time.com/time/health/article/0%2C8599%2C1935959%2C00.html |archivedate=9 November 2009 |deadurl=no }}</ref> ''[[Sounding the Alarm]]'' is a documentary exploring the transition to adulthood and the cost of lifetime care. It was criticized for being "full of dehumanizing rhetoric" and portraying ignorance of nonverbal communication.<ref name=SoundingTheAlarm>{{cite web|url=http://autismwomensnetwork.org/film-review-of-documentary-sounding-the-alarm-battling-the-autism-epidemic/|title=Film Review of documentary "Sounding the Alarm: Battling the Autism Epidemic"|author=Lei Wiley-Mydske|date=2014-07-19|publisher=Autism Women's Network}}</ref> | ||
Because of the number of objections to the organization, Autism Speaks fundraising events have been the object of organized protest.<ref name=JoinTheProtest>{{cite web|url=http://autisticcommunity.org/2013/11/12/join-the-protest-against-autism-speaks/|title=Join the Protest Against Autism Speaks|date=2013-11-12|publisher=Association for Autistic Community}}</ref><ref name=HoyaProtest>{{cite web|url=http://www.autistichoya.com/2012/11/protesting-autism-speaks.html|title=Protesting Autism Speaks|author=Lydia Brown|date=2012-11-05|publisher=Autistic Hoya}}</ref> Many of these protests are organized by the Autistic Self Advocacy Network.<ref name=ASANProtest>{{cite web|url=http://autisticadvocacy.org/2012/11/protesting/|title=Protesting|author=Katie Miller|date=2012-11-17|publisher=Autistic Self Advocacy Network}}</ref> In 2013, the organization Boycott Autism Speaks published a list of companies that donate money to Autism Speaks along with their contact information, urging those in the Autistic community to pressure those companies into dropping their support via an active [[boycott]], since direct appeals to Autism Speaks did not result in the desired changes.<ref name=BAS>{{cite web|url=http://boycottautismspeaks.com/contact-sponsors.html|title=Boycott Autism Speaks - Contact Sponsors|publisher=Boycott Autism Speaks}}</ref> A month later, ASAN published its 2014 Joint Letter to the Sponsors of Autism Speaks, signed by 26 different disability-related organizations, appealing to the moral responsibility of the sponsors, donors, and other supporters.<ref name=JointLetter>{{cite web|url=http://autisticadvocacy.org/2014/01/2013-joint-letter-to-the-sponsors-of-autism-speaks/|title=2014 Joint Letter to the Sponsors of Autism Speaks|date=2014-01-06|publisher=Autistic Self Advocacy Network}}</ref> | 단체에 대한 여러가지 반대에 따라 어티즘 스픽스의 기금 이벤트가 항의시위의 대상이 되기도 했다. | ||
Because of the number of objections to the organization, Autism Speaks fundraising events have been the object of organized protest.<ref name=JoinTheProtest>{{언어고리|en}} {{cite web|url=http://autisticcommunity.org/2013/11/12/join-the-protest-against-autism-speaks/|title=Join the Protest Against Autism Speaks|date=2013-11-12|publisher=Association for Autistic Community}}</ref><ref name=HoyaProtest>{{cite web|url=http://www.autistichoya.com/2012/11/protesting-autism-speaks.html|title=Protesting Autism Speaks|author=Lydia Brown|date=2012-11-05|publisher=Autistic Hoya}}</ref> Many of these protests are organized by the Autistic Self Advocacy Network.<ref name=ASANProtest>{{cite web|url=http://autisticadvocacy.org/2012/11/protesting/|title=Protesting|author=Katie Miller|date=2012-11-17|publisher=Autistic Self Advocacy Network}}</ref> In 2013, the organization Boycott Autism Speaks published a list of companies that donate money to Autism Speaks along with their contact information, urging those in the Autistic community to pressure those companies into dropping their support via an active [[boycott]], since direct appeals to Autism Speaks did not result in the desired changes.<ref name=BAS>{{cite web|url=http://boycottautismspeaks.com/contact-sponsors.html|title=Boycott Autism Speaks - Contact Sponsors|publisher=Boycott Autism Speaks}}</ref> A month later, ASAN published its 2014 Joint Letter to the Sponsors of Autism Speaks, signed by 26 different disability-related organizations, appealing to the moral responsibility of the sponsors, donors, and other supporters.<ref name=JointLetter>{{cite web|url=http://autisticadvocacy.org/2014/01/2013-joint-letter-to-the-sponsors-of-autism-speaks/|title=2014 Joint Letter to the Sponsors of Autism Speaks|date=2014-01-06|publisher=Autistic Self Advocacy Network}}</ref> | |||
== 자폐권리운동 단체들 == | == 자폐권리운동 단체들 == | ||